questionText: To ask the Secretary of State for Health and Social Care, what steps his Department is taking to monitor the implementation of the (a) UK Rare Diseases Framework and (b) England’s Rare Disease Action Plans.
answerText: The UK Rare Diseases Framework Board provides high level oversight and coordination of rare disease policy and action plans across the four nations. National implementation and delivery groups continue to meet regularly to report on and monitor the implem...
heading: Rare Diseases: Health Services