questionText: To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of the potential merits of ensuring that rare autoimmune rheumatic disease patients have named care coordinators.
answerText: We are aware there remains unmet need on coordination of care for people with rare diseases and work is underway to improve this.Integrated care boards (ICBs) are responsible for working with their local communities to understand the needs of the local po...
heading: Rare Diseases: Health Services