questionText: To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the availability of transition support for young people with Ehlers Danlos Syndrome who are moving from paediatric to adult NHS services.
answerText: Integrated care boards (ICBs) have a statutory responsibility to commission services which meet the needs of their local populations. It is the responsibility of ICBs, working with clinicians, service users, and patient groups, to develop services and car...
heading: Ehlers-Danlos Syndrome: Young People