questionText: To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 19 December 2025 to Question 99742 on Screening: Babies, whether the research being undertaken to understand delays in diagnosis will include consideration of (a) the performance of the newborn screening programme and (b) the process by which conditions are added to that programme; and whether he will publish the terms of reference for that research.
answerText: Last year, the 10-Year Health Plan was published following a national conversation to make the National Health Service work better for people.We know that significant unmet need remains for people living with rare diseases, and in February this year we pu...
heading: Babies: Screening