questionText: To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential merits of the National Paroxysmal Nocturnal Haemoglobinuria Service for care coordination for people with rare diseases; and what steps his Department is taking to help such patients to access multi-disciplinary care.
answerText: The UK Rare Diseases Framework sets out four priorities to improve the lives of people living with rare diseases, such as Paroxysmal Nocturnal Haemoglobinuria (PNH). This includes the priority of improving co-ordination of care.NHS England commissions ser...
heading: Rare Diseases: Health Services