questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of introducing a permanent newborn screening programme for spinal muscular atrophy on the Government's Life Sciences Vision ambition to make the UK a world leader for (a) access and (b) uptake of new and innovative treatments and technologies.
answerText: The UK National Screening Committee reviewed screening for spinal muscular atrophy in June 2023. While acknowledging recent developments, it found that more evidence was needed to assess how screening might work safely in the United Kingdom.Its recommenda...
heading: Spinal Muscular Atrophy: Screening