questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the financial and logistical burdens on families of children with severe forms of epidermolysis bullosa who are required to travel long distances to EB Healthcare Centres of Excellence.
answerText: NHS England recognises that some children with severe forms of epidermolysis bullosa (EB) and their families may need to travel significant distances to access highly specialised care provided through nationally commissioned EB centres. The rarity and com...
heading: Epidermolysis Bullosa: Children