questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the exercise by the National Institute for Health and Care Excellence of its discretionary power to show flexibility in relation to its (a) Standard Technology Appraisal and (b) Highly Specialised Technologies programme routing decisions in circumstances where there is (i) uncertainty on the incidence and prevalence of the disease and (ii) high unmet clinical need to ensure fair and equitable access to innovative new treatments for patients living with rare diseases.
answerText: The Department has regular discussions with the National Institute for Health and Care Excellence (NICE) about a range of issues, including about the delivery of public commitments. The NICE will consult on proposed changes to its criteria for highly spec...
heading: Rare Diseases: Health Services