questionText: To ask the Secretary of State for Health and Social Care, how many children have been diagnosed with metachromatic leukodystrophy since 2022; how many of those were diagnosed in time to receive NHS-commissioned treatment; and whether he has made an assessment of the potential impact of the absence of newborn screening on the timing of diagnosis.
answerText: Last year, the 10-Year Health Plan was published following a national conversation to make the National Health Service work better for people.We know that significant unmet need remains for people living with rare diseases, and in February this year we pu...
heading: Metachromatic Leukodystrophy: Children