questionText: To ask the Secretary of State for Health and Social Care, what comparative assessment he has made of expected outcomes for babies with spinal muscular atrophy living in areas (a) included in the in-service evaluation of newborn screening for SMA and (b) not included in the in-service evaluation.
answerText: The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...
heading: Spinal Muscular Atrophy: Babies