questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a national patient register for Congenital Disorders of Glycosylation.
answerText: No assessment has been made of the potential merits of establishing a national patient register for congenital disorders of glycosylation. There are no plans in England for a specific registry for this condition. Metabolic patients are included in the Nat...
heading: Congenital Disorder of Glycosylation