questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the impact on patient outcomes of there being no single NHS clinical specialty or department responsible for overseeing the care of people living with hypermobile Ehlers-Danlos syndrome and other Ehlers-Danlos syndromes; and whether he will consider establishing a nationally coordinated multidisciplinary care model for patients with these conditions.
answerText: Ehlers-Danlos syndrome (EDS) comprises a group of conditions that can affect multiple body systems and, as a result, care is often provided by a range of healthcare professionals depending on an individual's symptoms and clinical needs. NHS England commis...
heading: Ehlers-Danlos Syndrome and Hypermobility: Health Services