questionText: To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 7 January 2026 to Question 99741, what evidence the UK National Screening Committee considered in reaching its recommendation on screening for metachromatic leukodystrophy; and what assessment it made of the balance of benefits and harms.
answerText: Last year, the 10-Year Health Plan was published following a national conversation to make the National Health Service work better for people.We know that significant unmet need remains for people living with rare diseases, and in February this year we pu...
heading: Metachromatic Leukodystrophy: Screening