questionText: To ask the Secretary of State for Health and Social Care, whether his Department plans to review the available (a) clinical and (b) cost-effectiveness evidence on including spinal muscular atrophy in the newborn screening programme.
answerText: The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...
heading: Spinal Muscular Atrophy: Babies