questionText: To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve a) (a) the diagnosis of, (b) clinician training on and (c) access to treatment for patients with Ehlers-Danlos Syndromes and associated Cranio-Cervical Instability.
answerText: The Department recognises that Ehlers–Danlos syndromes (EDS) and associated cranio‑cervical instability (CCI) are complex conditions that can be challenging to diagnose and manage, and we acknowledge the concerns raised by patients and clinicians about va...
heading: Ehlers-Danlos Syndrome