questionText: To ask the Secretary of State for Health and Social Care, what steps his Department is taking in response to research by the UK BioIndustry Association published on 6 November 2025 showing that around half of rare disease medicines approved by the European Medicines Agency (EMA) are not being reimbursed for patients in England.
answerText: The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based recommendations for the National Health Service on whether new medicines represent a clinically and cost-effectiv...
heading: Rare Diseases: Drugs