questionText: To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve outcomes for children born with Congenital Anomalies and rare diseases; and what steps his Department is taking to improve support available to young people with those conditions when they are transitioning to adult care pathways.
answerText: The Government is committed to improving the lives of those living with rare diseases under the UK Rare Diseases Framework. We published the fifth annual England action plan in February 2026, where we report on the steps we have taken to advance the prior...
heading: Rare Diseases: Health Services