questionText: To ask the Secretary of State for Health and Social Care, what steps are being taken to mitigate disparities in outcomes associated with partial geographical coverage of the in-service evaluation of newborn screening for spinal muscular atrophy.
answerText: The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...
heading: Spinal Muscular Atrophy: Babies