questionText: To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 2 December 2025 to Question 93697, whether he has made an estimate of the number of (a) preventable deaths and (b) cases of irreversible disability in children with Metachromatic Leukodystrophy over the last ten years; and how such outcomes are considered in UK National Screening Committee evaluations.
answerText: When evaluating the evidence relating to a health condition such as metachromatic leukodystrophy (MLD), the UK National Screening Committee (UK NSC) considers important issues relating to the condition, the test, the treatment and the effectiveness of a s...
heading: Metachromatic Leukodystrophy