questionText: To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of implementing a new (a) strategy and (b) framework to replace the UK Rare Diseases Framework.
answerText: The UK Rare Diseases Framework was published following the National Conversation on Rare Diseases, which received nearly 6,300 responses. This helped identify the four priorities of the framework in tackling rare diseases, which are: helping patients get ...
heading: Rare Diseases: Health Services