questionText: To ask the Secretary of State for Health and Social Care, if he will take steps to ensure that all people living with Huntington’s disease have a named professional acting as a single point of contact to coordinate their care.
answerText: The Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease. Better coordination of care is a priority under the UK Rare Diseases Framework. On 26 February the National Institute for Health and Care ...
heading: Huntington's Disease: Health Services