questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the timelines for the UK National Screening Committee’s in-service evaluation for severe combined immunodeficiency screening in the NHS; and whether his Department has plans to reduce the timeline for the upcoming in-service evaluation for spinal muscular atrophy screening.
answerText: In June 2023, the UK National Screening Committee (UK NSC) recommended that a modelling study be carried out alongside an in-service evaluation of spinal muscular atrophy (SMA) screening in the National Health Service. Around 70 babies a year are born wit...
heading: Spinal Muscular Atrophy: Screening