questionText: To ask the Secretary of State for Health and Social Care, what his planned timeline is for the data collection, evaluation and interim decision for the in-service evaluation of newborn screening for spinal muscular atrophy.
answerText: On all aspects of population and targeted screening, Ministers are advised by the UK National Screening Committee (UK NSC).The UK NSC recommended an in-service evaluation (ISE) of newborn blood spot screening for spinal muscular atrophy (SMA) in National ...
heading: Spinal Muscular Atrophy: Babies