questionText: To ask the Secretary of State for Health and Social Care, whether she has had discussions with the National Institute for Health and Care Excellence on the case for a rarity modifier in its standard technology appraisal programme as part of its modular updates to its methods and processes.
answerText: The National Institute for Health and Care Excellence (NICE) can recommend most rare disease medicines that it appraises through the technology appraisal programme for some or all eligible patients. NICE has no current plans to undertake a modular update ...
heading: National Institute for Health and Care Excellence: Rare Diseases