To ask the Secretary of State for Health and Social Care, whether she is taking steps to improve the (a) diagnosis rate, (b) co-ordination of care and (c) access to specialist (i) care, (ii) treatment and (iii) support for hereditary spastic paraplegia.
In January 2021, the Government published the UK Rare Diseases Framework providing a national vision for how to improve the lives of those living with rare diseases such as hereditary spastic paraplegia. The framework lists four priorities collaboratively...
Hereditary Spastic Paraplegia