questionText: To ask the Secretary of State for Health and Social Care, whether his Department plans to develop standardised national guidelines for the (a) identification and (b) treatment of neurofibromatosis type 1 (NF1).
answerText: We remain committed to the UK Rare Diseases Framework, which highlights helping patients get a final diagnosis faster, and improved access to specialist care, treatment, and drugs as priorities to improve the lives of people with living with rare diseases...
heading: Neurofibromatosis