questionText: To ask the Secretary of State for Health and Social Care, what discussions he has had with NICE on feedback from stakeholders on how the impacts on carers are considered in appraisals for rare and ultra-rare conditions.
answerText: In making its recommendations on new medicines, the National Institute for Health and Care Excellence (NICE) takes into account all health-related costs and benefits, including health benefits to carers. It does not, however, take into account wider socie...
heading: Rare Diseases: Medical Treatments