questionText: To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of babies born with rare diseases in the first half of (a) 2025 and (b) 2024.
answerText: Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases. Digital data and technology are an underpinning theme of the UK Rare Diseases Framework. The National Disease Registration...
heading: Babies: Rare Diseases