questionText: To ask the Secretary of State for Health and Social Care, whether she is taking steps to improve the (a) diagnosis rate, (b) co-ordination of care and (c) access to specialist (i) care, (ii) treatment and (iii) support for hereditary spastic paraplegia.
answerText: In January 2021, the Government published the UK Rare Diseases Framework providing a national vision for how to improve the lives of those living with rare diseases such as hereditary spastic paraplegia. The framework lists four priorities collaboratively...
heading: Hereditary Spastic Paraplegia