To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to specialist services for people with Ehlers Danlos Syndrome.
Integrated care boards (ICBs) have a statutory responsibility to commission services which meet the needs of their local population, including for those with Ehlers-Danlos Syndrome (EDS). It is the responsibility of ICBs, working with clinicians, service ...
Ehlers-Danlos Syndrome: Health Services