questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of including a dedicated Congenital Disorders of Glycosylation section in the UK Strategy for Rare Diseases.
answerText: No assessment has been made of the potential merits of including a dedicated section on congenital disorders of glycosylation in the UK Rare Diseases Framework. The framework was published in 2021, and provides a national vision for how to improve the liv...
heading: Congenital Disorder of Glycosylation