questionText: To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure children with primary ciliary dyskinesia receive similar care to those with cystic fibrosis.
answerText: The Government is committed to improving the lives of those living with rare diseases such as primary ciliary dyskinesia.In 2021, the Government published the UK Rare Diseases Framework, providing a national vision for how to improve the lives of those li...
heading: Primary Ciliary Dyskinesia: Health Services