questionText: To ask the Secretary of State for Health and Social Care, what assessment she has made of the adequacy of treatment for Charcot-Marie-Tooth disease.
answerText: In January 2021, the Government published the UK Rare Diseases Framework providing a national vision for how to improve the lives of those living with rare diseases, such as Charcot-Marie-Tooth disease. The framework lists the following four priorities, c...
heading: Charcot Marie Tooth Disease