questionText: To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of opportunities available to the patient community to input into the (a) design and (b) delivery of the UK National Screening Committee’s upcoming in-se
answerText: The UK National Screening Committee reviewed screening for spinal muscular atrophy in June 2023. While acknowledging recent developments, it found that more evidence was needed to assess how screening might work safely in the United Kingdom.Its recommenda...
heading: Spinal Muscular Atrophy: Screening